Project Report
| Jan 6, 2022
Support 500 people with rare diseases in Romania
By Dorica Dan | Dorica Dan - project coordinator
![Therapy at NoRo Center]()
Therapy at NoRo Center
The goal of our project is to support 500 patients with rare diseases in Romania, providing them with the support to face their daily challenges through face to face and online medical consultation, therapies, counseling and psychological support for patients and families at NoRo Center and NoRo Center online services: www.centrulnoro.ro.
We have continued to provided online training courses on case management for rare diseases for community nurses in 2 new counties (10 nurses) in order to bridge the gaps between medical and social services and orient patients to the services they need. We have also organized 1 patient group online, 5 days, 3 hours/ day. We had 15 patients in the group that benefited from medical consultation and counseling, psychological intervention, social counseling and online therapies. We continued our therapy F2F with children at NoRo Center and both new therapeutic materials.
With the amount that we raised we could offer support for 15 patients. 15 families have been supported by the interdisciplinary team and have been offered psychologycal and social counseling and coaching to change their life style in order to better support their child.
![Therapy at NoRo Center]()
Therapy at NoRo Center
![Speech therapy room]()
Speech therapy room
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Sep 8, 2021
Support 500 people with rare diseases in Romania
By Dorica Dan | Manager of NoRo Center
![Celebrating 10 years anniversary at NoRo Center]()
Celebrating 10 years anniversary at NoRo Center
The goal of our project is to support 500 patients with rare diseases in Romania, providing them with the support to face their daily challenges through face to face and online medical consultation, therapies, counseling and psychological support for patients and families at NoRo Center and NoRo Center online services: www.centrulnoro.ro.
We have continued to provided online training courses on case management for rare diseases for community nurses in order to bridge the gaps between medical and social services and orient patients to the services they need. We celebrated the 10 years anniversery of the center together on 28th June and organized an international conference on integrated care and an open gate event at the center where we peomoted the art craft that our beneficiaries produced during our activities.
With the amount that we raised we could offer support for 10 families. From May 2021 we have improved our services by introducing a new accreditated day care service for young people with rare disabilities, providing therapies and life skills for young people and social and psycholgical counseling for their personall assistants that join them at the center. 10 families have been consulted by the interdisciplinary team and have been offered nutrition counseling and coaching to change their life style in order to better support their child. Also, 60 parents have participated in online training on healthy life style.
![Therapy at NoRo]()
Therapy at NoRo
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May 11, 2021
Support 500 people with rare diseases in Romania
By Dorica Dan | project leader
![Parents training on healthy lifestyle]()
Parents training on healthy lifestyle
The goal of our project is to support 500 patients with rare diseases in Romania, providing them with the support to face their daily challenges through face to face and online medical consultation, therapies, counseling and psychological support for patients and families at NoRo Center and NoRo Center online services: www.centrulnoro.ro.
Since October we have provided online training courses on case management for rare diseases for community nurses in order to bridge the gaps between medical and social services and orient patients to the services they need.
With the amount that we raised we coul offer support for 70 families. From January 2021 we have improved our services by introducing online training on healthy life style for prople affected by rare diseases. 10 families have been consulted by the nutritionist and have been offered nutrition counseling and coaching to change their life style in order to better support their child. Also, 60 parents have participated in online training on healthy life style.
![National conference]()
National conference
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